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Dear Friends of the Foundation,
On behalf of the Katzbeck family and the One Small Voice Board of Directors, we trust this letter finds you well. We have exciting news to share with you regarding some amazing milestones and accomplishments the One Small Voice Foundation is celebrating - all because of your generosity and support. You play not just an important role, but are vital to our success.
Since our inception, as a result of your generosity, we have raised over $510,000 for research. This milestone is a direct result of your support!
The One Small Voice Foundation is proud to be celebrating our 14th year as a 501(c)3 organization. We have grown from two passionate parents on a mission to over 3,000 loyal donors in 40 states. As you may recall, the foundation was started after our son Zachary was born with Hydrocephalus and Optic Nerve Hypoplasia (ONH). The good news to share with you is Zachary is now 14 years old and despite all odds being against him is thriving and happy. Zach continues to love music and soccer and most of all school. In June of 2014, he graduated from ELIM Christian Middle School to the High School. We have overcome many obstacles and setbacks during Zachary's life. He will forever be visually impaired, autisitic and has global developmental delays, has undergone 32 neurosurgeries, battles grand mal seizures and continues to be hospitalized as a result of endocrine issues caused by ONH. Through it all, he remains an inspiration to all and shows us on a daily basis the true meaning of strength and perseverance. Zachary does not lead the life of other 14 year olds but he is happy and teaches us the true meaning of happiness and has taken on us on a journey that we could have never imagined to be so wonderful.
Along our journey we have met amazing doctors, nurses and other families whose children have Hydrocephalus and Optic Nerve Hypoplasia. We are blessed to have met these remarkable people and they have provided our family and foundation with endless support. We meet new families every year and continue to hear from new families who have had a child diagnosed with ONH or Hydrocephalus which means our work is not done. We need to continue to raise funds and awareness of these two diseases so that the dedicated doctors can continue their research for improved treatments and causes of these diseases.
ONH continues to strike children at an alarming rate and continues to be on the rise. In fact, it is the leading single cause in childhood blindness so your donations have never been more important. Dr. Borchert has stated that Support from the OSVF enables our leading-edge research in optic nerve hypoplasia, which has yielded tremendous understanding of the risk factors and long-term outcomes of ONH, and has transformed how we manage this complex disease. Your generosity allows us to extend our reach globally-providing multidisciplinary counseling and care to hundreds of children in our clinics at CHLA, as well as sharing the latest knowledge with our colleagues in the medical community, and educating thousands of parents who visit our online resources every day. Simply put, it is your love and generosity that keep Dr. Borchert moving forward to help get us closer to the answers of what causes ONH and potential cures. The research team at the Vision Center at Childrens Hospital Los Angeles is uncovering lifesaving results because of people/companies like you who share our mission in supporting Dr Borcherts research efforts - thus improving the health and well being of children with ONH.
It is also because of your generosity, the One Small Voice Foundation has been able to support innovative pediatric research initiatives at Ann and Robert Lurie Childrens Hospital of Chicago (formerly Childrens Memorial Hospital) in the area of shunt technology. This ever evolving technology helps children reach their fullest potential by way of minimizing hospital visits while improving the quality of life for all children & adults with Hydrocephalus. Our partners in the foundation at Lurie Children's have shared the value of our support in a recent note: Since our door opened it is easy to assume that the hospital is complete, but additional philanthropic funds are needed to ensure essential programs and services are available to our region's children and their families. Through an association with One Small Voice Foundation, you will be a partner in making Chicago healthier for kids and families.
Please take a moment now to visit our website www.onesmallvoicefoundation.org to make a donation or click on the button below to donate directly. Our fiscal year ends August 31st and we thank you in advance for making it another phenomenal year!On behalf of all of us at the One Small Voice Foundation, The Vision Center at Childrens Hospital Los Angeles and Ann and Robert Lurie Childrens Hospital of Chicago, we thank you for your continued generosity and the unconditional love you have shared with us over the years.
Debbie & Kevin Katzbeck
Founders and the One Small Voice Foundation Board of Directors
P.S. Please friend us on Facebook and/or visit our website to update your contact information and view upcoming events. In addition, please send us your email to help us reduce postage costs in the future.The One Small Voice Foundation is a 501(c)3 organization and your donation is tax deductible.